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This is a book about a group of everyday heroes.

Each moment of their lives, caregivers of children with rare disorders are waging a battle to give their children life, health, and hope for the future. They're looking for answers, raising money for research, running interference with healthcare institutions, nurturing their children, and hoping against hope for a cure.

In this collection of inspiring and sometimes heartbreaking stories, you'll discover what it's like to take this journey. You'll learn about:

  • The power of community to bring answers and opportunities
  • The leveraging force of the internet to help people who are battling to find a cure
  • The role of caregivers as potent agents for change

Share their joys, read about their hopes, be inspired by their dreams and their struggles, and celebrate with us the gift of these precious children.

Click below to order Uncommon Challenges; Shared Journeys.

All of the money raised from book orders will be donated to the thirteen non-profits selected by the authors.
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Recently Joan Bellontine's cause, Team San Filippo, was the recipient of a $250,000 grant from the Pepsi Refresh Project. The money will help fund a drug treatment for children with San Filippo Syndrome.

This is a very emotional day for all of us parents who have children with this disease,” said Joan. “It is the first glimpse we are getting into possibly having something that will prevent the disease from progressing! There have been parents of other types of MPS diseases before us that have FOUND treatments for their children – could we possibly be next?

The parents of children with San Filippo have one more hurdle to get over before they can get the research they need complete—they need to raise $1 million dollars in total. These parents of children all over the country will be holding fundraisers to reach their goal before December 2011.

Grace for a Cure, Inc. will be holding a big fundraiser on June 18, 2011 in Long Island. Joan hopes you can join her for a day of festivities to raise funds towards this goal!