Each moment of their lives, caregivers of children with rare disorders are waging a battle to give their children life, health, and hope for the future. They're looking for answers, raising money for research, running interference with healthcare institutions, nurturing their children, and hoping against hope for a cure.
In this collection of inspiring and sometimes heartbreaking stories, you'll discover what it's like to take this journey. You'll learn about:
- The power of community to bring answers and opportunities
- The leveraging force of the internet to help people who are battling to find a cure
- The role of caregivers as potent agents for change
Share their joys, read about their hopes, be inspired by their dreams and their struggles, and celebrate with us the gift of these precious children.
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